Donation Value Guide – What is my Donation Worth?
Avoidance of disrespectful practices and language. And, from the standpoint of respect for persons, only individuals, their families, or other surrogates can consent to participation in research. Professionals provide the opportunity, information, and the like for consent, but consent remains the individual's or surrogate's prerogative, just as organ donation is the individual's or surrogate's prerogative.
Beneficence The principle of beneficence includes duties not to harm others, to prevent harm to and remove harm from others, and to provide positive benefits. Fairness Determining what is due to individuals or groups involves a cluster of principles, including fairness, equity, impartiality, and justice. Validity Validity refers to the approximate truth of inferences derived from measurements or research, or both Shadish et al. Trustworthiness Trust is vitally important in organ donation and transplantation.
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He identified several types of trust: Trust that the health care team will do all it can to care for an individual who is very sick or injured. Trust that chaplains will bring comfort and solace when nothing more can be done to save a loved one. Trust that the designated requester from the organ procurement organization is accurately representing the decision that the deceased individual made to be an organ and tissue donor when he or she was of sound mind and body. Trust that the surgical team will recover those organs and tissues to the maximum extent medically possible and that they will treat the deceased individual with dignity and respect.
Trust that the transplant team will carefully place the recovered organs and tissues to ensure that the grafts will be successful and benefit the recipient, that they will use the organs for the purpose for which they were donated, and that they will treat them, as well as the donor and the recipient, with dignity and respect.
Trust that the post-transplant team will do what is necessary to nurture the newly transplanted recipient back to health. Trust that the recipient's family and friends will continue to assist their loved one to return to a full life and that the recipient and family and friends alike will realize the great gift they have received.
Trust that the community and society will fully appreciate the benefits of organ and tissue donation and transplantation. Principles of biomedical ethics. New York: Oxford University Press; Racial disparities in organ donation and why. Current Opinion in Organ Transplantation. Empirical evidence for selective reporting of outcomes in randomized trials: Comparison of protocols to published articles.
Childress JF. Putting patients first in organ allocation: An ethical analysis of the U. Cambridge Quarterly of Healthcare Ethics.
Donation Value Guide
Belmont revisited: Ethical principles for research with human subjects. Public interest in medical research participation: Differences by volunteer status and study type. Clinical and Translational Sciences Journal. Attitudes and beliefs of African Americans toward participation in medical research. Journal of General Internal Medicine. Dickersin K.
The existence of publication bias and risk factors for its occurrence. Donate Life Northwest. Public perceptions. Federal Register. Federal policy for the protection of human subjects. Deceased organ donation consent rates among racial and ethnic minorities and older potential donors. Critical Care Medicine. Accessibility of trial reports for drugs stalling in development: A systematic assessment of registered trials. British Medical Journal. The continuing unethical conduct of underpowered clinical trials.
IOM Institute of Medicine. Organ donation: Opportunities for action. Kant I. Grounding for the metaphysics of morals. Comparison of registered and published primary outcomes in randomized controlled trials.
Assessing priorities for allocation of donor liver grafts: Survey of public and clinicians. Ethical principles in the allocation of human organs. Ethics of deceased organ donor recovery.
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Public comment. Presidential Commission for the Study of Bioethical Issues. Moral science: Protecting participants in human subjects research. Safeguarding children: Pediatric medical countermeasure research. Reverby SM. Examining Tuskegee: The infamous syphilis study and its legacy.
Experimental and quasi-experimental designs for generalized causal inference. Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies.
Journal of the National Medical Association. Sher G. Fostering public engagement. Canadian Medical Association Journal. Shore DA, editor. The trust crisis in healthcare: Causes, consequences, and cures. Racial disparities in preferences and perceptions regarding organ donation. Sulmasy DP. Ethical principles, process, and the work of bioethics commissions. Hastings Center Report. Community preferences for the allocation of solid organs for transplantation: A systematic review.
Ubel PA, Loewenstein G. Distributing scarce livers: The moral reasoning of the general public. Social Science and Medicine. The Belmont Report: Ethical principles and guidelines for the protection of human subjects of research. Task Force on Organ Transplantation. Washington, DC: U. Department of Health and Human Services; Transplantation ethics. Outcome reporting in industry-sponsored trials of gabapentin for off-label use. New England Journal of Medicine. Copyright by the National Academy of Sciences.
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